I am starting 'RSD-CRPSforum' for many reasons. There is information out there on both RSD and CRPS, but not all of it is accurate. Many people suffering from this disease or diagnosis, or even family member of those that have been diagnosed are desperately seeking current information.
My goal is to provide you with as much information on this subject as possible. Yes, I do know about CRPS first hand. Thus, I can provide an abundance of information for those individuals, family members or loved ones that are seeking more knowledge.
RSD / CRPS is a life changing / altering diagnosis. From the first day that you actually receive your diagnosis to the day you are able to wrap your head around it - you are desperately seeking information... You want to know that you're not alone, because the majority of people diagnosed have never heard of Complex Regional Pain Syndrome or Reflex Sympathic Dystrophy.
I would also like to have a safe place for individuals to feel free to voice information on their challenges, treatments, what has worked or not worked for them. This is all information that can be helpful to others - information can be powerful. This can seem like such a lonely diagnosis, but in reality it is estimated that there are over a million people in the United States alone that have been diagnosed with either RSD or CRPS! This is not counting those in other countries...
Please encourage others people that you know to visit our forum and I will do my best to keep you updated with the most recent information on treatments from the United States and from other countries.
There are options out there, but unfortunately the information is not getting out.
Welcome to the initial post on the RSD-CRPSforum blog!
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